Charlie has been kicking complete butt this week. Unfortunately, Dad is back to work and I’m exausted–midnight "feedings" with the Medela pump, and multiple visits to the hospital leave me with very little sleep time. But I’m definitely over-due on an update. I’ll list:
They took him off most of his sedatives to see if he could breathe on his own. He is breathing on his own, but has backup support from a ventilator. The ventilator is scheduled to come out tomorrow which is HUGE. But, a lot of kids bounce back and forth before they come off the ventilator completely, so we’re trying to be optomistic, but not get too disappointed if it doesn’t work the first time.
They’ve taken out his catheter.
They’ve got him on an oral medication to control his SVT (the condition that got us here in the first place).
They’ve taken him off his medication to aid heart function, and he seems to be doing well without it.
They’ve taken him off most of his diaretics, and he’s still peeing and pooping.
They’re going to start weaning him off of the "relaxation" medication that he’s still on.
They’ve increased the amount of feeds they’re giving him.
All these good signs are pointing to a day when we will move to what is called the "step-down" area. In that area, you actually live in the hospital and learn how to care for your child yourself. A nurse aids you, but in the end she leaves and you just live there the way you would in your house. Twice, the step-down unit has been mentioned. I know ICU is a slow road, but it’s nice to hear progress being mentioned.
Of course, then I think about taking him home myself, and start hyperventilating. Maybe I could borrow that venitlator Charlie’s not using?