Well, Charlie threw us through a loop, but his blood pressure ended up being a good thing. The doctors suspect it’s due to increased kidney function, which is actually a good thing. Once they got that established, they sat us down to talk about "transition planning." This is the part where they start figuring out how to get your baby home, and how much they’ll need once they’re home.
The long and short is this: Charlie could be out of intensive care by the end of the week. He could be out of the hospital before the end of the summer. He has two potential surgeries on the horizon–one, a shunt, the other, a button. Both are fairly common as far as surgeries go, but they would keep him in the hospital longer. The shunt would be to drain fluid from the brain. The button would be to feed him since they have no idea whether or not he’ll have a swallow reflex after being intubated as long as he was. The big deal is after he goes home. Because of his extensive brain bleeding, he will probably need daily therapy for an unknown amout of time. I will definitely have to quit my job. The human brain is amazing, but it usually isn’t amazing without a lot of help. I plan on helping little Charlie have the best quality of life possible.
So all those prayers are working–the little boy they didn’t expect to make it has surpassed the odds, and may be home before we know it. They even let me hold him!!!!
In the middle of all this some other things happened too: the Hub got a job offer back home is the first. We’re still hammering out the details, but we think it’s going to work out. Also, a very nice nurse had a little chat with me. She has a daughter with Down’s syndrome and she told me to make sure I don’t "lose" myself in being Charlie’s nurse/therapist. I think she’s right. Just like any new mother, it’s important not to forget who you were before your child was born. So, while this site will still have TONS of Charlie updates, don’t be surprised if I write about something else, or just talk about how I’m feeling.
I am so thankful for everyone who has, and who continues to pray for my little boy. Here’s hoping he’s home soon.