Home Again

What She Wore: Wide-leg blue jean capris; my ubiquitous black strappy sandals; t-shirt from Florida that I got when I was about fourteen–it’s one of my favorites.


We’ve just returned from the hospital.  Charlie is sleeping in his vibrating chair next to me.  He required morphine the day of surgery and then just tylenol yesterday.  Today, he’s had no pain killers at all–kids are so tough!  Now that the pressure has been relieved, his soft spot has become a soft trough.  Follow-up scans reveal good placement, so we’re looking pretty good so far.  We’ll be back in six weeks to see if his ventricles have begun to shrunk.  My mother-in-law conveniently had some random school holiday come up, so she was able to stay with me in the hospital and help out.  All and all, I’d say the experience wasnt’ bad as far as hospital stays go.  For now, we just watch and pray that there are no unexpected complications.
 
Thank you so much for the well-wishes and prayers.  I am always so grateful.
 
KM
 
PS:  Sitting around the room gave me some great ideas for blogs: my MIL’s cat, the role of the stay-at-home mom, and the mean nurse who yelled at my mom.  Let’s see if I can’t get them all down on paper.
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Quick!

Real Quick: surgery is scheduled for tomorrow at 11:00–from what I can tell, it will last around two hours and will involve an incision in his head behind his ear and an incision in his abdomen.  Pray pray pray if you’re that kind of person–it’s free and it helps more than you know. 
 
He will have a bump behind his ear permanently–you won’t be able to see it when his hair grows in, but in the meantime I may be investing in some hats!
 
KM
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So Random

What She Wore: What I was wearing when I last posted five hours ago. 

You know what sucks?  Amanda Bynes becoming main-stream famous.  I always wanted her to play me in the movie of my life–NOT because we look alike–because we don’t, but because she is one of the few actresses that can do goof-ball.  Now she’s all popular and she will NEVER play me in my movie.  Note: said movie is imaginary, and I know it, but still. . .
 
Who’s playing you in your movie?
 
KM
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Half Blog

What She Wore: blue jean capris; white tee; red, short-sleeve jacket with white polka dots; red canvas flats with a peep-toe and a bow.

I don’t think I’ve written a blog here that I’m really happy with in a long time.  My favorite entries are always the ones that feel real–that capture how I’m feeling.  The thing is, how I’m feeling is all over the place.  I can be completely joyful about finding that perfect house, and then break down into tears when Charlie needs surgery.  I’m lost in medical jargon and don’t always know which end is up.  I get a new haircut and feel like a million bucks.  I’m grateful to be home with Charlie, but miss my job like crazy.  I rediscover an old friends and get all fired up.  I see someone out with their "normal" children and get angry.  I feel as if I have endless possibilities and am worried that my son will be so limited in his. 
 
I don’t know which end is up.  I wish I could get it all out in a way that makes sense.
 
I guess this will have to do.
 
KM
 
PS: Still not sure when surgery will be–Tue or Friday–our preference is Friday, but we’ll see if the surgeon is willing.
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Can’t Have it All

What Whe Wore: Wide-let denim capris; black strappy sandals, a very strange (but cute) shirt with a share neckline, a loose cut and multi-colored stripes.  It’s hard to describe.


Provided I can get the freaking bank people to call me back, the house is ours.  I am over the moon about this and have images of a white picket fence and a seasonal flag flying out front.  I feel incredibly blessed, and promise to post a picture soon.

Unfortunately, we also heard today that Charlie will be having shunt surgery.  The doctor feels that it would best protect him from having any further brain damage.  I am no happy, but after everything we’ve been through I’m trying to focus on the positive.  He’ll have two days to recover in the hospital and that’s it.  I being really positive, but I’m also asking that anyone who prays to go ahead and put us on their list–they’ve helped us so much in the past. 

You might now be able to have it all–but I don’t feel like it’s the end of the world either.  I’ve cried some tears, but mainly because I don’t want my little guy to hurt.  In the end, I will cling to the faith that has gotten me this far.

KM

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Could it Be?

What She Wore: black running pants; LSU t-shirt; black strappy sandals.  I’ve gotten about eight hours sleep in two days and I am looking rough, rough, rough.  Babies with colds are NO fun.


The Hub and I are officially playing Real Estate Roulette.  We picked a house, and have now made a low-ball offer.  We crunched the numbers and things will be super-tight thanks to our new addition and his doctor bills, but we can manage to buy a house exactly where we want–provided they counter in a certain range.  So now we wait–will the house be ours?  Let’s hope so.

KM

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What To Say?

What She Wore: Black, pin-tucked, short-sleeve shirt with a mandarin collar; dark blue jean capris; houndshooth flats.  I am loving these little flats I tell ya. 


Well, I am experimenting with some other sites, but I’ll let you know if make a real move.  Honestly, I like the simplicity that you get other places, but I do think that Spaces Live has a commenting community that you don’t find other places.  In a lot of ways I’m a complete comment whore, so I’m not sure how I’d feel about that. 
 
I’m really not sure what to say here.  The Hub and I may have found a house.  Smaller and older than our last house, and more expensive.  Sigh.  That’s what happens when you move to a bigger metropolitan area.  I’ve been crunching the numbers and our little Bino in making our choices slim.  I’m quite excited about this place, though, so keep your fingers crossed.  It’s in a cute area, has a big front porch and a nice back yard, is well-maintained for it’s age, and it has the oh-so-important detail: a big enough kitchen.  The Hub likes to cook, and I like to entertain, so this is a must–it’s an older kitchen, but all that matters is basic size and layout.  This kitchen has exactly what we want with both. 
 
I took the Bino to the nuerologist last week and it didn’t ruin my entire weekend.  Yay.  The doctor found Charlie to be a little tight, but didn’t recommend any interventions other than the physical/occupational therapy that we’ve already applied for.  She was pleased to see how well he opened and closed his hands since this is often a problem for kids who have had head injuries.  As I have mentioned before, I have been VERY worried about Charlie’s vision, and I told her so.  Next week is our official opthamologist appointment, but the nuerologist seemed to think that his visual processing is fine, and that he is having a muscular problem keeping his eyes together–this forces him to pick an eye to look with.  She’s the second one to voice this opinion, so I’m starting to think that’s probably the issue.  That makes me pretty happy since that’s a relatively minor surgical fix (out-patient, baby!).
 
Next week we see the opthamologist for her opinion, and also the nuerosurgeon to see if pressure seems to be building in the little man’s head.  I’ve been feeling his soft spot every day, and it seems a lot softer, so I’m getting hopeful that we won’t need surgical intervention for his brain.  I’m thinking that I may be able to avoid the mud hut, but if Friday finds me ranting about needing a drink then you’ll know I heard something I didn’t want to.   Nonetheless, I feel hopeful and he continues to amaze me.  This weekend he would spend hours cooing–like he was having a conversation with you.  He also has DEFINITE opinions about music–the Leapfrog stuff that I think sounds sappy totally rocks his world.  End result?  Mommy went out and bought a Leapfrog toy that sings a bunch of songs.  I’m a sucker for that kid–a complete sucker.
 
Hope your weekend went well.
 
KM
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